Friday, May 30 we will be having a jeans for a cause day. All proceeds collected will go to help the family of Kylie Wallick, a local 3 year old girl battling stage 3 Churg-Strauss Syndrome. This is a terminal disease that causes inflammation of the blood cells. Kylie is currently on a waiting list for both a kidney and liver transplant.
Hi, my name is Kylie and I am 3 years old. Up until recently I have been doing the things every 3 year old child likes to do. I have a little sister and baby brother that I love helping my mommy take care of. It has been getting more difficult for me to do everyday things though. In March I was diagnosed with a rare disease called Churg-Strauss Syndrome. There is no cure for this disease. It is terminal. I still have good days and bad days, but my bad days are not easy to get through. I have pain in my belly, very high fevers, a rash, and I don’t want to eat, etc.Churg-Strauss has 3 stages and I am unfortunately in the last stage. This means that is will be problematic (likely impossible) to put in remission. There is a steroid treatment that has worked for putting the disease in remission. However, those people were in stage 1 or 2, but not the 3rd stage. The waiting list is about 6 months for me to even be seen by a doctor willing to even try the steroid treatment on me, because they are worried of an overdose since I’m so young. I am on a liver and a kidney transplant waiting list, but keep getting bumped to the bottom of the list because other people on the list will be healthy after receiving their transplant and I will continue to be sick. We are still going to attempt the steroid treatment. I am going to have to visit Philadelphia on almost a weekly basis to get these treatments. The money you are donating is going towards my care and possibly if we earn enough my family would like to take me to meet the princesses and Cinderella.